Starting on Humira

Hello dear readers!

This morning I’m waiting patiently on this lovely sunny day for a visit from an AbbVie care nurse, because today is the day I start a brand new course of medication called Humira. Its a drug that I’ve heard plenty about over the last couple of years and have been curious about trying. After going back on the Pentasa and the Azathioprine following my surgery, it was discovered through more tests at Broomfield that these were not showing much effect, hence starting me on Humira. 

The journey so far with the Humira started a few months ago, when I spoke to my consultant at Broomfield who told me a little about the medication and advised that it was an appropriate course of action. Following this I was given forms to have blood tests and a chest X-ray to check for signs of TB – a precaution that needs to be taken. I managed to get into Broomfield a few weeks ago and had these done – the whole process of the X-ray was far quicker than I anticipated; I was in and out within 10 minutes or so!

Pretty soon the results all came back clear as I suspected they would, and I had a phone call from the main company that deals with the organisation of Humira; specialised nursing staff and delivery. I arranged the delivery of my first lot of medication to my Grandparents who were happy to store the medication in their fridge. I’m pretty fortunate here as both my Fiancée Sarah (very exciting news here which I will elaborate on in another post!) and I would be at work. Something that is emphasised is that the Humira needs to be stored in specific conditions – between 2 and 8 degrees Celsius and out of direct sunlight; i.e. in the fridge. Before this first delivery I bought myself a mini fridge so that I had one place that was just for storing Humira. I guessed that with the amount of tea that’s consumed between me and Sarah, the temperature in the fridge must fluctuate by a few degrees with the door being opened and closed for the milk.

Prior to the first delivery I received a cool bag that is specially designed for the Humira so that it can be transported from fridge to fridge. It came with some ice packs to maintain a cool temperature sufficient for shorter journeys and stores two boxes of the pre-filled pens used to inject the medication. When I saw the size of this delivery however, my heart sank as the bag was huge! Fortunately a large part of this package was a sharps bin for the used pens along with the appropriate paperwork. There’s also a little diary for me to record when I have injections, where I inject, how I feel after each dose etc which looks really straight forward and easy to use.

My work has been amazing with working around my needs here. I am still working for a horticultural company here in Essex, and my boss has been very flexible with allowing me to go in later today so I can get this sorted. I have left it that I intend to be well enough after these injections to work; the usual side effect is tiredness. However if I am too tired or experience any other problems all I need to do is call in and say so. I consider myself fortunate to have understanding colleagues around me for this!

So now I just wait for the nurse to pop by to talk me through how to use this and off we go. Ah-ha! There’s the doorbell… I’ll let you know how it goes!

KBO

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About tomcoppin

Hello! I'm Tom, and have started this blog to share my experience of living life with a condition called Crohn's Disease. I've had the condition for a long time and have recently undergone surgery, hence the scar in the picture. I want to share my experiences to raise awareness of Crohn's, as well as helping out people who have been diagnosed. If you have any questions then feel free to message or comment and I will answer! Have a great day people. KBO
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