Just a little bit of an update for you: I had a meeting with my consultant this afternoon to discuss the results of my recent colonoscopy. I must admit: I was a little nervous about this chat knowing that they found an ulcer in the test. Discussing this further with the consultant it turns out that the ulcer was at a point in the gut he wasn’t expecting. If there were to be any ulcers left over he was expecting to see them around the join in the gut from the operation. However this one was found a little way from the join, and therefore is likely to be a new area of active Crohn’s starting up. In fairness its no real surprise. I always knew this was going to happen and as I’ve said to people who have asked if I’ve been cured: I don’t know if it will be next week or in ten years, all I do know is that it will pop up again. And now it’s popped up.
So where do I go from here? Well I have been put on a drug called Pentasa, which can help to manage Crohn’s in the large bowel. I had my first dose this evening as a matter of fact. I have been booked in for tests, and will see my consultant again in 2 months time when I will be reviewed again. If the Pentasa isn’t showing signs of helping to keep the ulcers in order then he will look at starting me on Azathioprine, another common drug for managing Crohn’s. Both of these drugs I have been on before and have not experienced any problems with side effects, so I am confident that this will be the same this time. If the Azathioprine doesn’t show signs of keeping a lit on things then there are more modern drugs that can be looked into. I cannot remember the names of these, but I will ask my IBD nurse to send me some information on these so I can read up a little on them, see what they are all about incase I need to look at them in the future. So thats a summary of todays fun and games!
In other news: in about a month’s time I will be going to my first ever “Belly Meet”! I have mentioned before the movement called #GetYourBellyOut – raising awareness for people with and IBD. I have been a member of their Facebook support group for a while now, and comment on the threads going on on the page. (If you are reading this and have an IBD, please do check them out). Something that has been mentioned is people in certain areas meeting up for dinner or something along those lines, to meet other people who are in the same boat. After talking to people and sharing advice, words of support and so on, online, it’s great to meet these people in real life and have a face to face conversation with them.
I was chatting to Allanah the other week, and we were we got talking about short breaks away. Now we live quite some distance from each other: I live in Essex, she lives up in Scotland. However, it turns out she lives just a couple of hours drive from my dad, who I am planning on visiting sometime soon. The conversation evolved and we suggested meeting up next time I am visiting my dad. We talk a lot, I have a lot of respect for her, and it will be awesome to meet her in person. She floated the idea of getting more people involved and making more of an event out of it, a short while later she had planned a proper Facebook event and had roused the interest of a fair few people, some of whom live fairly close, other people are travelling like me to get there. Again, if you are interested in this event then please let me know and I can give you information!
One final thing that I wanted to share today is something that happened in the pub the other night. I was visiting my mate Susie, and happened to go to one of the pubs for an open mic night. We bumped into a guy called Chris who I met at a charity event last year that was raising money and awareness for Crohn’s and Colitis UK. I got in touch with Chris via Facebook, and we have spoken a number of times since then. While we were at the pub he asked how I was getting on with my recovery, to which I replied very well. I started to say “Not sure how much I’ve told you…” which is a fairly usual phrase I use for starting these conversations so I don’t repeat myself and go over stuff that people already know. Then I had a comment that really made me smile: “I know quite a bit, I follow your blog.” I know a lot of my friends and family read what I write, which is really great to hear – thanks for taking an interest! It was just having this conversation with a person in the pub and the timing of hearing that phrase was brilliant. It really makes me smile when I talk to someone who reads what I write. It makes me remember that when I press the “Publish” button on the right hand side of my screen that people actually read what I write. Thanks to all of you who are reading this! It really means a lot.
Take care people,